2024 年第 6 期 第 0 卷

单中心瓣膜外科手术数据库和随访系统20年建设成果分析

Analysis of 20-year construction achievements of single center valve surgery database and follow-up system

作者：焦玉清张海波孟旭王坚刚

英文作者：Jiao Yuqing Zhang Haibo Meng Xu Wang Jiangang

单位：首都医科大学附属北京安贞医院瓣膜外科中心，北京100029

英文单位：Valve Surgery Center Beijing Anzhen Hospital Capital Medical University Beijing 100029 China

关键词：心脏外科；数据库；随访系统

英文关键词：Cardiacsurgery;Database;Follow-upsystem

• 摘要：

• 目的 探讨心外科专业数据库发展的困境及突破方向，希望为心外科专业数据库的建设带来有益的参考。方法 通过对首都医科大学附属北京安贞医院瓣膜外科中心的手术数据库和随访系统信息提取与对比分析，回顾总结数据库的运行情况及存在的问题。结果 手术信息数据库2001年起已持续运行20余年，收录瓣膜手术患者15 420例，并已成为临床工作的一部分。我们发现20余年来瓣膜手术患者在年龄、病变瓣膜、手术方式等多方面发生改变，提示了瓣膜疾病的变迁及外科手术技术的进步，治疗患者年龄由最初2001年的（46±15）岁上升至2023年的（58±13）岁。随访系统自2013年运行2年内，注册患者962例，参与随访691例，随访率71.8%。但后续出现持续发展的瓶颈。相比于手术数据库，随访系统在服务主体定位、信息采集方式、数据库工作模式等多方面存在差异。结论 大数据时代的心外科数据库建设需要国家顶层设计与实践探索相结合，建立以患者为核心、国家层面的纵向数据库，配合以病种为核心、专业层面的横向数据库。涵盖完善的基础及专业信息，应该是未来专业数据库发展的方向。

• Objective To explore the dilemma and breakthrough direction of the development of cardiac surgery professional database, hoping to bring beneficial reference for the construction of cardiac surgery professional database. Methods The operation database and follow-up system in Valve Surgery Center, Beijing Anzhen Hospital, Capital Medical University were extracted and compared, and the operation of the database and the existing problems were summarized and reviewed retrospectively. Results The operation information database had been running for more than 20 years since 2001, including 15 420 cases of valve surgery, and had become a part of clinical work. In the past 20 years, the age of patients undergoing valve surgery had changed in many aspects, such as age, diseased valves and surgical methods, indicated the changes of valve diseases and the progress of surgical techniques. The age of patients treated by valve surgery increased from (46±15) years old in 2001 to (58±13) years old in 2023. A total of 962 patients were enrolled in the follow-up system within 2 years since 2013, and 691 patients were followed up, with a follow-up rate of 71.8%. However, the bottleneck of sustainable development appeared later. Compared with the surgical database, there were differences in the follow-up system in terms of service subject orientation, information collection mode, and database working mode. Conclusion The construction of cardiac surgery database in the era of big data required the combination of national top-level design and practical exploration. The establishment of a patient-centered, national-level longitudinal database, combined with a disease-centered, professional-level horizontal database. Covering perfect basic and professional information, should be the future direction of professional database development.